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Patient and Public Involvement (PPI) Event 2026

Date: 03/03/2026 to 03/03/2026 Venue: Stirling Court Hotel

Hosted by NHS Research Scotland (NRS) and the Chief Scientist Office (CSO) of Scottish Government, the Patient and Public Involvement (PPI) Event 2026 will take place at Stirling Court Hotel — part of the University of Stirling Campus — on Tuesday 3 March

PPI partners, professionals, researchers, including early career researchers, and policymakers working in the area, and with an interest around developing their PPI practice and activities, are being encouraged to attend.

Programme

The following draft programme is correct at time of publishing, but is subject to change. A full breakdown of workshops is available below the day's agenda.

09:00 – 10:00

Registration and Refreshments

10:00 – 10:15

Welcome

Speaker TBC

10:15 – 11:00

Plenary

Inclusive Language for Patient and Public Involvement; Sammy Waite, Patient and Community Involvement in Research Officer, University of Edinburgh

11:00 – 11:30

Refreshments and Networking

11:30 – 12:30

Session 2

 

2A (Workshop)

Stepping forward together: Overcoming barriers in Public Involvement

2B (Workshop)

Real-world dilemmas in Patient and Public Involvement and Engagement: pragmatic observations from working with under-served groups

 

2C (Oral Presentations)

Advanced talks (title TBC)

2D (Oral Presentations)

Patient Voice in different types of study

12:30 – 13:30

Lunch and Networking

13:30 – 14:30

Session 3

 

3A (Workshop)

Building inclusive knowledge spaces, one LEGO® brick at a time: Involving underrepresented communities in data research

3B (Workshop)

Patient and public involvement in evidence syntheses (systematic reviews)

3C (Workshop)

Trauma-Informed Practices for Ethical Patient and Public Involvement Research 

3D (Oral Presentations)

Ethical and Inclusive

14:30 – 15:00

Refreshments and poster viewing session

 

15:00 – 15:20

15:20 – 15:45

Plenary

Discover Your Role — Public Involvement Action Plan for Wales; Peter Gee, Senior Public Involvement Manager, Health and Care Research Wales

Public Engagement Fund Showcase: Engaging Scottish Communities with Data; Rachel Edwards, Public Engagement Officer, Research Data Scotland

15:45 – 15:55

Awards and Close

 

Workshop Session One Overview (11:30  12:30)

1A (Workshop)

Stepping forward together: Overcoming barriers in Public Involvement

Led by: Jenny Sharma, Patient and Public Involvement Manager, Cancer Research UK Scotland Centre

1B (Workshop)

Real-world dilemmas in Patient and Public Involvement and Engagement: pragmatic observations from working with under-served groups

Led by: Kath Williamson, CSO Early Post-Doctoral Fellow, University of Glasgow

1C (Oral)

Advanced talks (title TBC)

Chaired by:

11:30 – 11:50

 

11:50 – 12:10

 

12:10 – 12:30

In Case I Don't See You: Good Afternoon, Good Evening - Good PPI; Ms Charlie Guy, Public and Patient Involvement (PPI) Coordinator, University of St Andrews School of Medicine, Mr Joshua James, Junior Creative, STV

Patient and Public Involvement in Qualitative Analysis: Engaging Patient Advisory Group colleagues in the coding of Fear of Cancer Recurrence interviews on the PETNECK2 Trial; Maebh Kenny-Jones, Research Assistant, University of Stirling

UKRI Mental Health Platform: PPIE From The Ground Up!; Dr Sophie Quick, Communications and Engagement Manager, UKRI Mental Health Platform, University of Edinburgh and Public Contributor

1D (Oral)

Patient Voice in different types of study

Chaired by:

11:30 – 11:50

 

11:50 - 12:10

 

12:10 – 12:30

Lived experience at the heart of co-analysis: experiences in palliative care research; Dr Sarah Bowers, SCREDS Lecturer, University of St Andrews/NHS Forth Valley, Dr Anne Fearfull, FCAC, University of St Andrews

Embedding Patient Voices in Bowel Cancer Research; Dr Emma Parsons, Research Assistant, University of Glasgow and public contributors

Depression Detectives - Online Citizen Science; Iona Beange, Patient and Public Involvement Co-ordinator, University of Edinburgh, Sophia Collins, Public Engagement practitioner and consultant

 

Workshop Session Two Overview (13:15 – 14:15)

2A (Workshop)

Building inclusive knowledge spaces, one LEGO® brick at a time: Involving underrepresented communities in data research

Led by: Piotr Teodorowski

2B (Workshop)

Patient and public involvement in evidence syntheses (systematic reviews)

Led by: Alex Todhunter-Brown

2C (Workshop)

Trauma-Informed Practices for Ethical Patient and Public Involvement Research

Led by: Chris Rourke

2D (Oral)

Ethical and Inclusive

Chaired by:

13:15 – 13:35

 

13:35 – 13:55

 

13:55 – 14:15

Two-Eyed Seeing: The Ethics of Ethical PPI from Western and non-Western Viewpoints — Lessons from the Global Heritage Women for Health Equity Project; Leila Neshat Mokadem, PhD scholar, Robert Gordon University, & CEO, Equity Lighthouse, Jane Ogamba Akadiri, Founder and Charity Manager, Touch of Love Outreach

Creating Meaningful Impact: Inclusive and Equitable PPIE Across Sectors; Amy Connelly, PPIE Specialist, Heriot-Watt University and Public Contributor

Co-production in MRI Research: Experiences from the Eating Disorders and Autism Collaborative; Dr Michelle Sader, Postdoctoral Research Fellow, The University of Aberdeen

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